Change Makers, Podcast Episode

Briana Banos: From Dancer, To Near Death, To Documentarian (Ep 22)

To the left Briana Bano's stand with her hands in the air, wearing a Tshirt with her logo for her Film, Preventable, Protecting Our Largest Organ, about Red Skin Syndrome (RSS) and Topical Steroid Withdrawal (TSW).  The Text reads, "A conversation with Briana Banos: A Fierce Advocate With a Story You're Going to Want to Hear."

Briana Banos’ life changed due to Red Skin Syndrome (RSS), a condition caused by topical steroid withdrawal (TSW). Before, she was professional dancer and newlywed with a world of possibilities in front of her. Briana never imagined that her pesky eczema would change her life’s path.

Briana Banos, bed ridden, with shaved head, and face wrapped in bandages due to her Red Skin Syndrome (RSS) caused by Topical Steroid Withdrawal (TSW)

Briana followed her doctors’ orders and applied steroid cream to her itchy skin and eventually found it was actually making it worse. To her surprise, stopping the steroid led to inflamed and oozing skin and tremendous pain. Unable to find relief, she took to Google, and found she was not alone. Reading the symptoms, she discovered that her condition matched a condition called Red Skin Syndrome, and she was not alone.

A once very active person, a person who loved to make people smile, Briana’s felt suffering alone and mindlessly binge watching television was not the most she could make out of her life. She began documenting her journey of Topical Steroid Withdrawal (TSW) on YouTube. Briana found a network of other people also dealing with the effects of Red Skin Syndrome. She also learned that the most medical community were not recognizing their condition as real. In the spirit of Briana Banos, she felt she could do more to spread awareness.

Preventable: Protecting Your Largest Organ, A Film by Briana Banos

Despite still very much dealing with her own painful symptoms of RSS, Briana Banos, in true dream chaser fashion, and no professional filmmaking education, set out to make a documentary. She fundraised, and was in awe of the support she received through fundraising, a not of approval from International Topical Steroid Addiction Network, (ITSAN), and the National Eczema Association.

Logo for the Documentary Film by Briana Banos, called Preventable: Protecting Our Largest Organ.  The film sheds awareness on Red Skin Syndrome (RSS) caused by Topical Steroid Withdrawal (TSW)

Briana Banos, one woman film crew, flew not only around the country but around the globe. She talked to families affected by RSS and TSW and heard their stories. She interviewed medical professionals that were not only agreeing that this is real- but providing treatment to patients. You can view Briana’s documentary here, for free.

Connect with Briana Banos and DC&CM/The People Need to Know

You can find Briana on her instagram page for the film, @Preventable_Doc, or on her YouTube channel, here. For the People Need to Know, she suggests Brené Brown’s Netflix Special, A Call to Courage. In addition, she recommends Ruthie Lindsey’s instagram, @RuthieLindsey.

For the first time in DC&CM history, Betty and Alé share the same People Need to Know. They HIGHLY recommend Meggan Watterson’s masterpiece of a book, “Mary Magdalene Revealed: The First Apostle, Her Feminist Gospel & the Christianity We Haven’t Tried.” Purchase, here. Also, Alé recommends Meggan’s free meditiation, Prayer of the Heart, which you can listen to here on Apple Podcasts, or search wherever you listen to Podcasts.

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